Some of our members may have received our MPS help ID bracelet and information pack along with Emergency card. If you haven’t received one and would like one please contact us by sending your name (or Childs name) and contact details with MPS Help ID bracelet as subject to irishmpssociety@gmail.com This Pack is kindly sponsored by BioMarin.
MPS Europe was formally established on the 1st of December 2017 and they are currently seeking applications for Managing Director. If you are interested in applying please click on the Job description for further details and how to apply:
Hurler BMT Conference 11th March 2016
Congratulations and well done to Susie Power who took part and completed a 10,000ft Tandam Charity Skydive Challenge at Skydive Ireland and raised €1,123.00 in aid of The Irish MPS Society
Kilcuan Weekend 29/04/2016-02/05/2016
All Ireland MPS Conference 2015
Clarion Hotel, Liffey Valley, Dublin
A Blog By Dermot Devlin from “My Way Access”, about his experience at our recent MPS Conference. Thanks Dermot http://www.mywayaccess.com/blog/a-sense-of-belonging-and-community/
We are both delighted and proud to be celebrating the 20th Anniversary of The Irish Society for Mucopolysaccharide Diseases.
We are equally delighted and proud to enclose the programme for our forthcoming All Ireland MPS Conference which will be held on 11/12th September in The Clarion Hotel, at Liffey Valley, Dublin.
The committee has been working very hard to present a high standard conference. So you are encouraged to take advantage of this opportunity where information and experiences are shared both formally and informally by family members and professionals.
We look forward to receiving your completed booking form by Friday 17th July
No celebration would be complete without cake and candles! We have a specially commissioned candle, one for each family, which will be presented to you at the close of the conference.
Click here to download Conference Booklet
