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HSE Refuses funding for Vimizim

The HSE has decided to refuse to reimburse Vimizim in Ireland due to lack of clinical data and a perceived lack of value for money.

 

 

 

 

 Rare Disease Day 2015 Video

 

 

 MPS AWARENESS DAY MAY 15th 2013 VIDEO

 

 

 

 

 

 

 

 

The Irish MPS Society is a voluntary support group which represents and supports children and adults suffering from Mucopolysaccharide and related diseases, their families, carers and professionals.

It is a registered charity, managed by the members themselves, and entirely supported by voluntary donations and fundraising.

The aims of the Irish MPS Society are as follows:

  • to act as a support network for those affected by MPS and related diseases
  • to bring about more public awareness of MPS and related diseases
  • to promote and support research into MPS and related diseases

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