DATES FOR YOUR DIARY 2016

Dates for your Diary 2016

 

1st – 4th May Kilcuan, Clarinbridge, Co Galway

The Irish MPS Society’s AGM takes place in Kilcuan, Clarinbridge, Co Galway on Saturday April 30th at 2pm. We would love to see as many of our members there if you can make it.

20th – 22nd May All Ireland Conference, Templepatrick 
 All Ireland booking form

 

15th May keep the date free! MPS Awareness Day

 

14th – 17th July 2016 International Conference in Bonn, Germany

 

Saturday 27th August Memorial Day at Belvedere House 

 

Saturday 19th November Christmas Party Clarion Hotel, Liffey Valley, Dublin 22

All Ireland MPS Conference 2015

All Ireland MPS Conference 2015

Clarion Hotel, Liffey Valley, Dublin

A Blog By Dermot Devlin from “My Way Access”, about his experience at our recent MPS Conference. Thanks Dermot http://www.mywayaccess.com/blog/a-sense-of-belonging-and-community/

The Irish MPS Conference 12th September 2015

The Irish MPS Conference 12th September 2015

We are both delighted and proud to be celebrating the 20th Anniversary of The Irish Society for Mucopolysaccharide Diseases.

We are equally delighted and proud to enclose the programme for our forthcoming All Ireland MPS Conference which will be held on 11/12th September in The Clarion Hotel, at Liffey Valley, Dublin.
The committee has been working very hard to present a high standard conference. So you are encouraged to take advantage of this opportunity where information and experiences are shared both formally and informally by family members and professionals.

We look forward to receiving your completed booking form by Friday 17th July
No celebration would be complete without cake and candles!  We have a specially commissioned candle, one for each family, which will be presented to you at the close of the conference.

Click here to download Conference Booklet

Áras an Uachtaráin visit 15/05/2015

Áras an Uachtaráin visit 15/05/2015

MPS Awareness Day Coffee Morning 21st May 2015

MPS AWARENESS DAY COFFEE MORNING

21st May 2015

Hello All, its that time of year again, we are having Annual MPS Coffee Morning in aid of Aoibhe and The Irish MPS Society for MPS Awareness Day, Its on the 21st of May 2015 in Killeagh Community Hall from 9am to 12pm. We have some wonderful prizes for our raffle again this year. so pop in for Tea, coffee, cakes and a chat. we are trying to raise vital funds for the society, The Irish MPS Society is a voluntary support group which represents and supports children and adults suffering from Mucopolysaccharide and related diseases, their families, carers and professionals. Any baking and prizes are very welcome

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Limerick Panto in Aid of The Irish MPS Society

Limerick Panto in Aid of The Irish MPS Society

 

Charity night is Monday 29th December 2014 at 7.30pm

 

Plan your Christmas Panto & Help out The Irish MPS Society !!

 

Tickets for this event are €15.00 eachLimerick Panto 2014

For ticket information please contact Mary Lynch on 087 2075981, For anyone thinking of travelling to Limerick please contact Mary Lynch on the above number for accommodation details as she will need numbers to get a good deal on a hotel.

 

 

ALL PROCEEDS are going directly to the Irish MPS Society your support in this event would be very much appreciated.

Quicker diagnosis needed for Ireland’s 8,000 rare diseases

Quicker diagnosis needed for Ireland’s 8,000 rare diseases

 

Published on www.thejournal.ie on Thursday 03rd July 2014

 

Dates for your Diary 2014

 

Dates for Your Diary 2014

 

Remembrance Day in Belvedere House & Gardens, Mullingar, Co Westmeath

Saturday, 30th August 2014

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All Ireland MPS and Fabry Conference (click for more details)

12 -14 September 2014 Hilton Templepatrick

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13th International Symposium on MPS and Related Diseases (Click for more details)

13 – 17, August 2014, Costa do Sauipe, Bahia State, Brazil.

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Christmas Party in The Glenroyal Hotel, Maynooth, Co Kildare

Saturday, 29th November 2014

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More details for each of these upcoming events to follow in due course

Irish MPS Families – Important date for your diary

Patient Invite Day 2014You should all receive an invite to our Patient and Family Day shortly. RSVP as soon as you get them as we will need to know how many we will have to cater for.

Irish MPS Families – Important date for your diary

Irish MPS Families – Important date for your diary

 

MPS Patient Day will take place on March 29th 2014
in the Glenroyal Hotel, Maynooth, Co Kildare.

 

We will have several speakers.

Doctor Greg Pastores the new Adult Metabolic Doctor in the Mater Hospital will be speaking along with invited guest speakers.

It will be very informative day for all MPS/ML Patients, Children & Adults.

We hope to have childcare facilities in place too.

We will post more information on speakers, Topics, etc. soon.

Keep March 29th 2014 free to attend in your diary.

Look forward to seeing as many families as possible.