Hurler BMT Conference March 2016

Hurler BMT Conference 11th March 2016

Charity Skydive 29/04/2016

Congratulations and well done to Susie Power who took part and completed a 10,000ft Tandam Charity Skydive Challenge at Skydive Ireland and raised €1,123.00 in aid of The Irish MPS Society

Kilcuan Weekend 29/04/2016-02/05/2016

Kilcuan Weekend 29/04/2016-02/05/2016

DATES FOR YOUR DIARY 2016

Dates for your Diary 2016

mps xmas pic for website

 

Saturday 10th December 2016

Christmas Party and Santa Visit

in

Turoe Pet Farm, Bullaun, Loughrea,Co.Galway

For directions etc please visit www.turoepetfarm.com

 

All Ireland MPS Conference 2015

All Ireland MPS Conference 2015

Clarion Hotel, Liffey Valley, Dublin

A Blog By Dermot Devlin from “My Way Access”, about his experience at our recent MPS Conference. Thanks Dermot http://www.mywayaccess.com/blog/a-sense-of-belonging-and-community/

The Irish MPS Conference 12th September 2015

The Irish MPS Conference 12th September 2015

We are both delighted and proud to be celebrating the 20th Anniversary of The Irish Society for Mucopolysaccharide Diseases.

We are equally delighted and proud to enclose the programme for our forthcoming All Ireland MPS Conference which will be held on 11/12th September in The Clarion Hotel, at Liffey Valley, Dublin.
The committee has been working very hard to present a high standard conference. So you are encouraged to take advantage of this opportunity where information and experiences are shared both formally and informally by family members and professionals.

We look forward to receiving your completed booking form by Friday 17th July
No celebration would be complete without cake and candles!  We have a specially commissioned candle, one for each family, which will be presented to you at the close of the conference.

Click here to download Conference Booklet

Áras an Uachtaráin visit 15/05/2015

Áras an Uachtaráin visit 15/05/2015

MPS Awareness Day Coffee Morning 21st May 2015

MPS AWARENESS DAY COFFEE MORNING

21st May 2015

Hello All, its that time of year again, we are having Annual MPS Coffee Morning in aid of Aoibhe and The Irish MPS Society for MPS Awareness Day, Its on the 21st of May 2015 in Killeagh Community Hall from 9am to 12pm. We have some wonderful prizes for our raffle again this year. so pop in for Tea, coffee, cakes and a chat. we are trying to raise vital funds for the society, The Irish MPS Society is a voluntary support group which represents and supports children and adults suffering from Mucopolysaccharide and related diseases, their families, carers and professionals. Any baking and prizes are very welcome

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Limerick Panto in Aid of The Irish MPS Society

Limerick Panto in Aid of The Irish MPS Society

 

Charity night is Monday 29th December 2014 at 7.30pm

 

Plan your Christmas Panto & Help out The Irish MPS Society !!

 

Tickets for this event are €15.00 eachLimerick Panto 2014

For ticket information please contact Mary Lynch on 087 2075981, For anyone thinking of travelling to Limerick please contact Mary Lynch on the above number for accommodation details as she will need numbers to get a good deal on a hotel.

 

 

ALL PROCEEDS are going directly to the Irish MPS Society your support in this event would be very much appreciated.

Quicker diagnosis needed for Ireland’s 8,000 rare diseases

Quicker diagnosis needed for Ireland’s 8,000 rare diseases

 

Published on www.thejournal.ie on Thursday 03rd July 2014